4th December 2021
I realise I haven’t updated since Amber has been home and I’ve also been crap at replying to messages! (They are piling up in my inbox and I PROMISE I will reply to you all as soon as I have a minute!) I love you all and thank you for all the love being sent to Amber and I 
Just to reassure you all, despite having at least two, incredibly scary nights where I thought I was going to lose her, Amber is doing well. She has a cold currently which is a worry alongside her Edwards syndrome so her care is taking even more of my attention than usual ans I’m averaging3 hours sleep a night 
( I didn’t know that was possible!)She did have a very important and special visitor yesterday so here’s the photos from then and I’ll do a proper update when I have some energy (and sleep!) 
Amber, The Trisomy 18 journey of 'my little fox' 